We took him to his Pediatrician this morning who confirmed that he does have RSV/Bronchiolitis. Because of his Chronic Lung Disease, this is a terrifying diagnosis (if you click on the link above, C's lungs are much like those of a premature infant in the diagrams). Luckily, C's case is not severe enough to warrant a hospitalization, and we're praying it won't turn severe. We know that children can decompensate very quickly, so we're keeping a very close eye on him and are prepared to take off toward Duke if we need to.
We've had several people very surprised that C has RSV since he gets Synagis every 28 days. I think it's very important for parents to remember that Synagis does not prevent RSV like the chicken-pox vaccine. Synagis actually provides antibodies to help prevent RSV infections from becoming serious ~ it just helps kiddos to fight off an RSV infection. These antibodies only last for 28 days, which is why C has to get a repeat shot each month. For more information, please ask your Doctor and read the Synagis website. So, C can still catch RSV, but it is the hope that Synagis helps keep it from becoming serious.
C actually recieved his RSV shot last week, so we hope that is helping him fight off this infection and keep him out of the hospital.
I also want to ask that keep Mercy Grace in your thoughts. She was C's ECMO roommate and they were discharged from Duke on the same day (see Carter's Story for a picture). She has been fighting off an RSV/Bronchiolitis infection and was being rushed to the hospital via ambulance this morning for breathing complications resulting from the RSV.
I'll update you as soon as I have any news on MG or C.
1 comment:
Get well soon Carter, and we'll keep Mercy Grace in our prayers as well, hoping that both of you have speedy recoveries from this nasty little virus.
Love and prayers,
Alison, Chris, Davis, & Ryan Cieszko
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