Angry!!!

I'm so angry. The survival rate should be more than 50% folks. We can send rockets to the moon, check our email from cell phones, listen to radio transmitted via satellite, yet they can't figure out what causes, and more importantly, how to fix CDH! If I say "pink ribbon" I bet 95% of you would say "breast cancer" and if I ask "what month?" you'd say "October." The 5-year survival rate for breast cancer has soared to over 85%. And do you know why? Because the survivors, and the friends and family members of those affected by breast cancer got out there and raised money for research and awareness. Come on! Take that money you were going to spend on your fancy coffee and donate it to a CDH cause or to one of the few hospitals daring enough to perform research on CDH. If you don't know of any let me know and I'd be glad to send you information. Email me at heelsgirl2001@yahoo.com


Tell just ONE person today about CDH. Tell them that it's as common as spina bifida and cystic fibrosis, yet its survival rate remains the same as it was many years ago. Tell them that half of babies diagnosed with it don't survive. Then ask that person to tell ONE other person. One day, the right person will hear about it. (do any of you out there know Oprah??)


We are so lucky and blessed that Carter survived it, but still his life (and ours) will never be normal because of CDH. But I don't want another family to recieve the CDH diagnosis and go through this agonizing journey. We could so easily have been in the place of the parents who have lost their children--when Carter was 3 days old, we were told that it was unlikely he would survive the night. We were thisclose to planning a funeral. So help us spread the word and one day maybe we'll have our own turquoise month and an overall 95% survival rate.