Carter's doing well. He's down to a very low level on the morphine, which should be completely off tomorrow and then he'll have his PICC line removed. He's just recently started showing some withdrawal signs, mostly as snit-fits (as nurse Shanda calls them) during which he goes from smiling baby to pissed off baby in a matter of seconds. He cries, turns red, lips turn blue, breaks out in a cold sweat, throws his arms back and holds his breath. He's still pretty hoarse, so his cries are pitiful. He looks like he's screaming his head off, but all you hear is a little "heh" noise. Typical baby temper-tantrum mulitiplied by a hundred because of the withdrawals. It takes us about 30 minutes to get him to calm down and then he sleeps for a few hours. We're so thankful that he wasn't experiencing this type of withdrawal all along. He's being given meds to take the edge off the withdrawals, but it's just something that he's going to have to outgrow. For right now, we're trying to limit visitors and stimulation so he can stay calm.
He's "eating" 92 mL (just over 3 ounces) every 3 hours through his NG tube. Speech, OT and PT haven't been able to do much therapy this week because of the snit-fits, but we're hoping we can get the ball rolling next week on oral feeds. He's also a champ at filling up that diaper!
Elizabeth, from Breath of Hope, has a website on which she features CDH kids. Carter is currently the featured baby and you can check him out at: http://facesofcdhawareness.blogspot.com/
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