Carter is one month old today and we are truly amazed by his strength and by all the support we've gotten. We love all the comments on here, the emails and cards--they help to keep us going each day.
Luckily, I don't have much to report. They continue to slowly wean the support Carter is receiving. As of this afternoon, he was essentially breathing room air on the conventional vent. We've heard chatter about starting to wean his sedation, but that makes mommy and daddy nervous. He doesn't seem to be quite as sensitive and when he does get upset (his blood pressure goes up for a few seconds), he is able to quickly recover on his own without the help of additional meds. I think I forgot to mention that the surgeon wasn't able to completely close his abdomen, so he has a patch covering that opening that they plan to close up on Wednesday--surgery #4!! It certainly doesn't seem to be bothering Carter, but we'll be glad when his insides are actually on the inside :) We're happy he didn't need a silo and that everything almost fit inside.
We have to say a very special THANK YOU to our Carolina Therapy Services family. You have gone above and beyond to make this easier on us and we appreciate you more than you'll ever know.
Also, thank you to those who have made donations to the Parker Reese Foundation. I promise to work on the thank-you notes as soon as I can. The Foundation has not only given us a home, but also an extended family in Jes & Ashley. The Foundation has a new website at: http://www.theparkerreesefoundation.com/
Please keep James, Monica and Connor McGuire in your thoughts, prayers and finger crossing. Connor has Autism and had been diagnosed with Infantile Spasms. It seems that his spasms are getting worse and the new medication he's on for seizures has some yucky side effects. The strength and patience they have shown with Connor (and especially some of his nurses and doctors!) is inspiring to us. The link to their blog, McGuire Family, is to the right or click here: http://connormcguire.blogspot.com/
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